Take advantage of educational resources created to help address and reduce GAPS IN DIAGNOSIS AND care
Request a ProjectRED™ speaker presentation to learn more about NMOSD, the racial and ethnic disparities that exist, and how you can connect with the NMOSD community in a face-to-face setting with an Alexion representative.
GET CONNECTED
Access helpful brochures to find out more about the disparities faced by women of African and Asian ancestries and how your practice can address them.
Racial and Ethnic Disparities in NMOSD: Examines the role racial and ethnic factors play in the prognosis of certain patients with NMOSD
NMOSD BROCHURE
ProjectRED™ NMOSD Brochure: Includes guidance for how your practice can address some inequities
NMOSD BROCHURE
The goal of Alexion’s ProjectRED™ initiative is to make a difference in the lives of patients with NMOSD by working toward:
IMPROVING ACCESS TO CARE
Providing resources in patients’ native languages and helping them find experienced clinicians
DECREASING TIME TO DIAGNOSIS AND DISEASE MANAGEMENT
Educating on the risk of NMOSD in minority populations among nonspecialists, encouraging prompt and appropriate testing, and helping to reduce potential provider bias
BRIDGING THE SOCIOECONOMIC DISCONNECT
Raising awareness of the current disparity and encouraging a shift in mindset and behavior
GAINING A BETTER UNDERSTANDING OF BIOLOGICAL FACTORS
Partnering to study minority populations more thoroughly, including genetic traits, comorbidities, and disease activity and severity
ADDITIONAL RESOURCES FOR YOUR PRACTICE AND YOUR PATIENTS
Explore patient advocacy organizations to find more information and support
Navigating NMOSD: A resource for patients that provides information and guidance for
understanding and managing NMOSD
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Guthy Jackson® Charitable Foundation: An organization that prioritizes patient support,
research, and education and provides multilingual NMOSD resources for patients who are
non-native English speakers
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The Sumaira Foundation: A 501(c)(3) dedicated to raising awareness of NMOSD, supporting
patients, and funding research
LEARN MORE
Some of the advocacy resources listed above are from independent, nonprofit patient service organizations. Inclusion on this site does not imply endorsement.